It's back again. This
shit. This for-the-love-of-God-please-stop-I-can't-stand-it shit. As posted before, I've had a bit of trouble with psoriasis, and now it's back with a vengeance.
The
medication I was taking was recently pulled from the UK, and shortly afterward pulled from the US. Something about a tiny percentage of people having fatal brain infections attributable to the medication. When I read about the UK recall I knew the US wouldn't be far behind, but I hoped maybe they'd let it slide. They didn't. (And they shouldn't). But I had forgotten how bad it could get. The itching. The warmth. The aching. The staring.
Now the horror of flare-up is really cramping my style.
I had forgotten about wearing jeans and long sleeves when the mercury pushed 75 degrees. I had forgotten how loath I was to meet anyone's eyes when I was at the store. I have terrific peripheral vision and can see people at eight o'clock doing a double-take to stare at my arms or my feet or my chest or my ears.
I took a few pictures to illustrate what I'm trying to cover up in public, and of course can't bring myself to post them. They're terrible. But they're my feet. My shins. My stomach. My shoulders.
I fucking hate this shit. It makes me want to stay in bed all day, to escape into books, to soak in the tub and stay in bed all day.
My dermatologist prescribed a useless cream that makes me smell like an old man. It doesn't work. We discussed more aggressive therapies the last time I saw him, but he wanted to go with this stuff first. Fine. I've tried it. In fact, I've used it before. It didn't work then and it doesn't work now and until I see him Saturday all I can do is slather it on and wince when it stings and hope he prescribes something a bit stronger this weekend.
So this weekend, dermatologist willing, I'll have a choice between a pill that worked last time that can kill a kidney in a year, or a pill that didn't work that goes to town on your liver. They don't like to prescribe either for more than six months. Beyond that, there's another of the biologic family that hasn't been pulled. It has good word of mouth and I'm hoping he'll skip the middle step and just prescribe
Humira. Looks like fun, huh?
A real barrel of monkeys.
The likelihood of those side effects doesn't scare me, and that more than anything should tell you how pissed off I am at my skin. Frankly, the likelihood of any of those side effects are low, but I still find myself weighing definite skin blemishes with the possibility of tuberculosis and cancer and thinking
Ehh, but my skin would be clear!For fuck's sake, is it too much to ask?